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XML for blood ordering, investigation ordering and lab results
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Many Hospitals are inundated with clinically significant paper that
is frequently illegible and misfiled (a polite description for lost). Using
XML technologies Poole Hospital are exploring techniques for electronic filing
of reports to casenotes, status tracking of investigation requests, and ordering
control.
Role of the medical record
The basic requirement of a medical record is "that it be a faithful
record of what clinicians have heard, seen thought and done- it should also
be attributable and permanent". In practice the majority of medical records
held in acute trusts today are incomplete, frequently illegible, rarely attributable
and, given that they are hand written on paper, they are not permanent.
The problems associated with Medical records within the NHS are very
well known
[Inadequacies of hospital medical records]. They exist as various types of documents,
many of which are highly structured, produced and therefore available electronically.
Many are semi-legible, written on a degradable medium in inks that fade. These
documents are filed (with less than 100% accuracy) into multiple cardboard
files which then form the primary decision support tool for Doctors and associated
professions. However these files are regularly unavailable and/or incomplete
at the point of care.
1
At Poole additional challenges are provided by the need to share casenotes
with a neighbouring Trust within the same conurbation (where patients travel
between Trusts faster then their medical records do) and the quantity of results
to be filed.
2
The Upton decision
In June 97 we took key clinical and managerial staff off site to update
the IM&T strategy for the organisation. It was difficult to raise their
vision beyond the next couple of years, but we had a useful debate about the
essential elements of the medical record, and also a lively one about whether
we or the patient should hold the paper record.
The meeting confirmed the essential elements of a medical record as
the referral from primary care, the pathology and radiology results, and any
previous discharge letters. With these and no paper records, the clinicians
felt reasonably comfortable to treat without casenotes. This work has since
been confirmed by the experience of other Trusts in the UK, particularly the
Royal Worcester Infirmary.
EPR concept
The NHS in the UK is now moving towards the use of electronic patient
records for all healthcare trusts, which aims to achieve this project over
the next 7 years. Many concepts and technologies have been tried at various
Beacon sites in England and it obvious from this work that the major issues
are organisational, although some technological issues such as mobile computing
and electronic prescribing are yet to be conquered.
Ordering and reporting - the traditional way
Currently medical staff request services from various departments by
completing request forms and forwarding them to the departments concerned
or, in the case of routine blood test, adding the request document to a clip
located near the nurses station, ready for collection by the phlebotomists
when they start their round on the ward. Pre-printed patient identity labels
may be used on the form, although ensuring a steady supply of current labels
and removal of outdated labels seems to cause more difficulty than one would
anticipate. Medical staff may also produce orders in batches so that tests
are carried out over a number of days. Where such orders are left on the ward
they may be inspected and amended any suitable staff member, however once
they are sent to the service department there is no record of what has been
ordered or when the order was placed unless appropriate notes have been made
in the medical record. Thus we have significant problems with repeat orders
and unnecessary testing of patients. We believe that this may be of the order
of 5% of all requests however as many such tests are weeded by lab staff without
being recorded the figure is probably higher.
Traditionally, at Poole, up to 35% of X-ray films have not been reported
where they are for internal use, so clinicians have to examine the films themselves,
and record that this has occurred in the notes. This leads at best to unavailability
of films when needed and at worst to their loss and repeated exposures for
patients. The revised Radiation Protection regulations increase the onus on
ensuring that films are only exposed where they will be reported on or reviewed.
Pathology results (Biochemistry, Haematology and some Microbiology)
are available electronically across the Trust), Radiology results rely either
on Medical staff looking at the films or waiting a number of days for printed
x-ray reports.
The use of our traditional medical records also poses significant problems
for researchers and audit teams, not only is it difficult to identify the
records that may be of interest it may also be difficult to locate the record
itself.
Current experience - access to results and manual ordering
We undertook a simple survey of Doctors in the trust last year to show
what facilities they currently have difficulty in accessing. The results are
in
Table 1. From 240 forms sent to all medical staff,
we only had 10 returns, so these can only be taken as an indicator of levels
of satisfaction.
|
Outpatient | Inpatient |
| Access to referral letters | 8 | 7 |
| Access to Pathology results | 6 | 7 |
| Access to Radiology reports | 5 | 5.5 |
| Access previous discharge letters |
6 | 7 |
| Order Pathology tests | 7 | 8 |
| Order Radiology investigation | 6 | 7 |
| Order blood products | 7 | 7 |
| Scale 0= hopeless 10= perfect |
| 10 replies from 240 questionnaires |
Table
1
Some of the comments that came back with the questionnaires were more
telling;
- The system only works as my secretary and outpatients nurse work
very hard to find all the records before clinic
- Access to previous discharge letters and radiology reports is always
difficult, and often delayed for at least 10 days
- Requests are delayed by the time to take them to the laboratory
- For outpatients, I hand the request to the patient, or risk loosing
it
- Orders are slow to do, and I have no record of the requests
Scope of exploratory EPR
The work that we undertook led us to produce a list of items that would
enable us to test the organisational issues and benefits that an electronic
patient record would bring to Poole.
- 1. Order Pathology investigation by Doctor- Print order and sample
label locally and dispatch to lab with sample/specimen or print order in Lab
(depending on whether Doctor intend to take sample immediately or await Phlebotomy
round)
- 2. Order Radiology investigation by Doctor - Order printed in Radiology
(to allow scheduling of work which currently tends to happen at end of day
when medics deliver requests to department).
- 3. Order Blood products by Nurse - Order printed in Porters lodge and
Blood Bank
- 4. Demographic details available from PAS - PAS will provide necessary
details for staff to confirm
- 5. Current Inpatient lists available from PAS-This to be available
by Ward or Consultant to facilitate ordering after ward rounds
- 6. Pathology results available-Path results will be matched to request
and displayed (methodology for matching printed request, sample/specimen and
result to be explored).
- 7. Radiology results to be made available electronically
- 8. Discharge summaries to be available from PAS
- 9. Referral letters to be available (scanned in outpatients until the
time we receive them electronically)
- 10. Print "bleeding list" for phlebotomists on demand, order by selected
wards (These could be configured as Phlebotomy round 1,2 etc.).
- 11. Appropriate security- control of individuals actions will be required
- 12. Adaptability- it is likely that it will be necessary to control
users actions by rules that are based upon :- the individual, the requested
action, the time, previous actions.
- 13. Bulk ordering of tests e.g. an admission pack for M.I.
- 14. Links to guidance and protocols that are already available on the
Trust intranet.
This list allows for the provision of documents that have already been
produced electronically or are scanned in at the trust to medical staff without
the need to search a number of legacy systems. It allows us to provide an
ordering system to try to overcome some of the problems previously described.
The Trust already has a well developed Intranet which provides easier access
to clinical protocols for medical staff, and we also developed a "Patient
and Relative Information Service", appropriately called PaRIS, within our
Intranet which allows for the provision of information to patients.
We undertook a procurement exercise, and selected Graphnet as our company
of choice to work with, both on cost, and on their approach to the items we
had identified as important.
Ordering - the XML way
On paper, a single document is used to order lab investigations and
Blood products. Interestingly these are usually designed by the Laboratory
staff and not necessarily for ease of use by the staff requesting tests. The
result is that requesting staff are frequently unaware of the rationale or
anticipated content for information required on the form which they then incorrectly
complete (if it is supplied at all). By the time nursing and laboratory staff
have trained them in proper use of the forms, the next group of junior doctors
replace them.
The use of XML allows the presentation of the requesting document to
be decoupled between the medical staff and the lab. The clinician sees a form
designed for ease of ordering. Details such as patient identifiers and requester
are prefilled depending on login and location in the system. Ordering of predefined
sets of tests (presets) and access to relevant protocols are provided at the
order screen, and where data entry can be limited, preset selections can readily
be used. The laboratory sees a form with all the details they require (mandatory
fields completed) in a legible format, designed to support their workflows.
Thus on a medical assessment unit when a patient arrives with a working
diagnosis of "Chest Pain" staff can select the patient on the system and "Chest
Pain" from the preset list. This provides all the requests required by the
units "Chest Pain" care pathway from the appropriate diagnostic departments.
It is unnecessary for staff to write multiple request forms and individually
route them to the correct department, and because the tests form part of an
agreed care pathway the tests could also be ordered by a Nurse practitioner
on the unit.
Rules enable the system to highlight to the doctor at the point of ordering,
where a previous result of the same type exists. It is important that these
advisory notices are flexible to allow groups of tests to be treated differently,
but also for specific locations such as High Dependency Units to have different
tolerances to others before the warnings occur.
Ordering blood products
We were very aware of the need to include electronic prescribing in
our exploration of electronic patient records however the work required to
enable this on our current Pharmacy system was considered too extensive for
this current project. However Blood products can be considered to be prescribed
and administered, if not dispensed from the Pharmacy. Our current system is
manual, long winded and relies on much human intervention. Following appropriate
tests Doctors "write up " the prescription in the patients notes, Nurses then
complete an order form and ring for a porter. The porter collects the order
form from the ward and delivers it to the Blood Bank, where he waits for the
blood products to be dispensed and delivers them to the ward.
Naturally our portering staff were keen to reduce the distance travelled.
We have not succeeded in eliminating the paperchase completely- blood product
requests are still written into patient notes, which are placed on the system
by Nursing staff, using a view of the order form that suits their needs. This
is then printed in the porters lodge, the porters are still obliged to walk
to the lab, collect the products and deliver them to the ward. Nursing staff
can then access a different view of the order form to acknowledge receipt
of the products.
Why XML?
We have seen that Medical staff need a minimum set of documents to be
available when making clinical decisions and that our pre-existing methods
encourage clutter and loss and has issues with legibility, status tracking
and duplication. We see that XML is already in being used for document storage
and communication processes in lots of other industries and the involvement
of firms like Microsoft means that it is likely to become the de facto standard
in many industries. Many in the NHS have experienced difficulties in using
over designed, idealised standards as opposed to pragmatically developed working
standards e.g. EDIfact versus HL7 for communicating laboratory results and
the adoption of broad industrial standards has many attractions.
It is our intention to store primary documents from medical records
in XML so that the information both supports clinical care and is useful for
research and audit purposes. Documents stored in this way should not degrade
in the same way that the physical casenotes does, and are available simultaneously
at multiple locations.
The flexibility of XML documentation enables us to incorporate the diverse
formats of patient information in a unified structure. The system suppliers
to primary care services in the UK are starting to produce referral documentation,
and anticipating receiving discharge letters in XML format. As the national
vision of a unified Health Record for the population unfolds, we see XML as
being a very pragmatic and elegant solution to passing meaningful data between
disparate systems, as well as solving some of the long-standing shortcomings
of our paper records.
Bibliography
| [Inadequacies of hospital medical records] | Patel AG. Mould T.
Webb PJ. |
| [Foundations for an electronic medical record] | Rector AL. Nowlan
WA. Kay S. |
| [The survey on the completeness of the medical records as the basis for
producing valuable health information] | Kang S. Kim KA |
| [An audit of the quality of operation notes in an otolaryngology unit] | Bateman ND. Carney AS. Gibbin KP |
| [Patient Core Data Set. Standard for a longitudinal health/medical record] | Renner AL. Swart JC |